Marvel Studios Fvcked up with Infinity War… and here’s why.

THERE ARE SPOILERS FOR INFINITY WAR IN THIS REVIEW.

Content Warning Foul Language.

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Last chance… SPOILERS AHEAD. Some for Age of Ultron and other Marvel titles as well.

I’m going to preface this by saying that I don’t follow the comics. I haven’t since uni for a couple of reasons. So I’m approaching this review and my reactions to Infinity War from a MOVIE watcher’s perspective.

Superhero movies are my brain candy. They are one of the few types of movies I make sure my disabled, broke as fuck ass gets out to see in theatre. I save up for these things. It costs me a lot in time, energy, health resources, and money that I really don’t have a lot of to go see these.

I have expectations for them (and yes, I let far too much slide with regards to these movies).

I hurt like a son of a bitch yesterday, and I STILL went to see the movie. Because I really wanted to have the Marvel Movie Experience.

Boy did I not get it.

Backing up a little, I’m not much of a traditionalist for 99.9% of things in life. My husband and I never did a wedding, we don’t have a ‘song’, we’re lackadaisical about couples holidays… and still been happily married for 20+ years. To kinda give you a bit of a handle on my me. I like bending genres, reading/writing genre-busting books…

But one of the very few things I will go to the mat for are story-telling tropes and formulas.

I ripped the hell out of Rogue One because it fucked up the formula.

And that’s one of the ways Marvel Studios fucked up with Infinity War.

See, in the comics universes, there are two main leaders that most people know. DC and Marvel.

Some people like one and dislike the other, some people like both for different reasons.

I love both, for a variety of reasons.

If I want dark and gritty entertainment, with a grimdark sense of reality, I will turn to DC, because historically they have given that to me. I can COUNT on them to give that to me.

Walking into a DC movie, I know that it’s very likely a character that I like might die, it might even be the main character, or the love interest, and because I’m going into it knowing that, I’m good with it.

Walking into a Marvel movie, I know I’m going to be left on a high-point, one illustrating hope and helping me believe for a single moment in time that humanity is worth saving and that hope actually matters.

They didn’t end Infinity War on a high point. They left me no hope, which means I have NO EXCITEMENT FOR THE NEXT FILM. None.

I really don’t give a fuck about anything to do with Marvel now. (Except Deadpool 2 and if that sucks it’ll be the final nail in the coffin of my love for Marvel. Actually, if Loki ends up dead for good, with as much as Tom loves that role? That’d kill it off quicker than fire on a seedling for me too.)

Lolz, people will think I’m being dramatic. While I own the fact that I CAN be dramatic, I stopped watching Walking Dead after they killed off ONE (not both) of my favorite characters. Haven’t caught an episode since and I stuck with that show for YEARS of bad writing. I’d been a fan from first season.

When I’m done, that’s it. I’m done.

And frankly, I have no reason to go watch any other Marvel film having to do with the Avengers or any of them until and unless they fix what they fucked up. So sad for Captain Marvel… even if it’s a prequel, I’m not laying down money to see it. Not after Infinity War.

Marvel Studios has done an amazing job in the past ten years investing me in the characters they mostly freaking killed off in Infinity War.

Leaving me soured at the end of that film was a bad business decision on their part.

You can argue (and it’s been argued with me) that because they made me FEEL SOMETHING (in this case anger, irritation, annoyance, and WHAT THE ACTUAL FUCK Marvel?) then the storytelling achieved its goal.

I disagree.

Storytelling isn’t JUST about making people feel something. That’s part of it sure.

It’s not even close to all of it though.

Part of successful storytelling for series and franchise titles like the Marvel movies is MAKING THE VIEWER OR READER WANT TO COME BACK FOR MORE.

Not turning them off from ever wanting to watch anything they made again.

And that’s exactly what Infinity War did to me and many people like me.

I came home after watching IW and tried to watch one of my favorites in the Marvel universe. A comfort watch, so to speak. One I can watch over and over again, regardless. I couldn’t get through it. IW killed Marvel for me.

Because they fucked with the formula.

I knew, going into it, to expect *very bad things* from early reactions of my friends and general chatter about the movie and crowds reactions.

I didn’t expect it to make me hate Marvel Studios. That was a bit of a shock. I didn’t expect it to remove all enjoyment I have in previous titles.

Because they didn’t give me any hope at the end of IW. The bad guy got the happy ending. That’s it. I count on Marvel for hope, and they didn’t deliver.

A single flash onto how the heroes are going to fix this cock-up just before end credits could’ve saved that movie. Because it did have most of what Marvel does so well.

They didn’t do that though. They left me, (and the entire theatre I sat in) cold, dead, and mourning our favorites.

Knowing that, because there are already sequels to other Marvel franchise movies signed and filming, that something would fix it (or that all the other ones will be predated to IW), but no real knowledge ON FILM for us to cling to? No hope?

Not a good move, Marvel. Not a good move at all.

Oh and guess what, other than Deadpool 2, I’m not laying down money on ANYTHING Marvel puts out until and unless they fix the cock-up they made with IW in a way that my heart can take.

They broke my trust. They broke my heart, and those things can’t be fixed easily.

Which is WHY we pay attention to things like tropes and story-telling genres and models of entertainment.

People trust us (I’m as much of an entertainer as anyone, given that I’m making my money from writing and editing) so I KNOW how this is supposed to work.

It’s a shame Marvel didn’t. Or that they thought they were too big to fail (and hell, maybe they are). I only know that *I* a die-hard Marvel fan, am not spending more money on Marvel films barring Deadpool 2 going forward. Not unless they fix what they fucked up.

When I want a hopeful ending to a story, I’ll pick up a romance, because I’m guaranteed an HEA (Happily Ever After) because it’s a ROMANCE. (They aren’t marketed as romances unless they have an HEA.)

When I want my guts ripped out and anxiety about my characters, I’ll pick up a sci-fi or a fantasy by a favorite author.

When I want to wonder who-done-it with no way of knowing if it’ll be happily resolved, I’ll pick up a crime thriller.

When I want a who-done-it with a guaranteed HEA? I’ll pick up a paranormal romance.

In entertainment, consumers expectations HAVE to be taken into account when you’re doing anything with regards to, you know, entertainment.

If you aren’t thinking about that while you’re crafting what you hope will entertain, then you’re going about it the wrong way.

I still don’t know what the actual fuck Marvel Studios and the Russo Bros were thinking by doing that with IW.

I trusted Marvel to give me what they always have, hope. (I mean, I’m still hoping for the fast-twin character to come back from Age of Ultron, because NO ONE DIES AND STAYS DEAD IN MARVEL! That’s one of the things I love about it!)

They left that story open ENOUGH (fast healing, fast-paced scene and we didn’t actually see him dead/stay dead) that it’d be believable within the Marvel universe if he reappeared.

So there was *some* hope for that character.

In IW… they left us with NO hope. None. Except the vague knowledge that they have to fix it somehow, or all other upcoming titles will be predated to IW, which… would be extremely odd and ill thought out.

But given how badly they fucked up with IW I wouldn’t put it past them.

I trusted Marvel to give me what they always have, what I *need* from Marvel.

They failed in that trust.

Within the first five minutes, they killed off my favorite character, Loki. I knew that one was coming because I specifically asked a friend if he died (I needed to be prepared for that one).

So, I’m sitting there watching the movie, and it’s entertaining enough in the way Marvel films usually are for me. Lots of action, pretty people doing unbelievable to the laws of physics things on screen… (I’m a scientist, by all rights I should hate superhero movies JUST for the OMFG whut aspect on the physics… like I said, I give them far too much leeway.) some emotional oomph, lots of CGI, reasonably decent writing.

Writing wise, they tried to cram far too many disparate plots into one 2ish hour movie. They had too many character arcs competing for attention so NONE of the character arcs had the emotional oomph they needed.

If they wanted to do that, from a writing standpoint, and make me feel it, they needed to slow things down a bit and make the movie longer. I have no problem with long movies that have an intermission. Hell, I went to Trilogy Tuesday for LoTR (19+ hours in a movie theatre).

It could have been done, and honestly, should’ve been done.

They did a good job almost making me empathize with the megalomaniacal genocide preaching villain (which, honestly, that was VERY well done because I’m very much not for killing trillions of sentient beings with the snap of a finger).

But Thanos was the only one who got a happy ending in that film.

ALMOST EVERYONE ELSE I CARED ABOUT DIED.

Then roll credits.

That… that is not the hopeful ending I need from Marvel Movies.

Now. Yes. I know that they are likely going to fix it in the sequel, which was originally titled Infinity War 2.

And it IS Marvel. People don’t stay dead in Marvel.

Which is one of the charms Marvel has for me. If I wanted a fucking DC movie, I’d’ve GONE to a DC movie.

There are a number of ways they can fix it (and I swear to gods if they don’t Marvel will be dead to me, don’t piss off your fan base peeps, it’s bad business). I’ve discussed this with friends who read the comics, and I know which one is most likely.

That friend is warning me that there will likely be a sacrifice needed for the ‘fix’. And if it is? (You’ll note, those of you who’ve seen it, that ONLY the original Avengers survived?) It’ll be one or all of the originals who has to die to replace the new ones. They’ll have to sacrifice their lives to pass on the torch to the new Avengers, and that’s how it will be.

Which will also ruin Marvel for me.

See, Marvel is not DC. Marvel heroes can retire, they can fade away, they can be referred to as ‘they had to leave for the good of their families’.

They can’t die, not and stay dead. Not if it’s gonna be Marvel, and not if it’s gonna leave viewers hopeful and wanting to come back for more.

In order to make Infinity War a good movie, other than the basic storytelling issues it had, it needed to have a flash of a way for the heroes to fix it before the end credits.

Something to leave the viewer with the hope that, ‘oh, holy shit the world is fucked but we KNOW our heroes can fix it!’

That’s what brings us back to watch the next Marvel film, and the next, and the next.

Not a sense of poignant gloom and doom and ‘wait, that’s IT? THAT’S WHERE THEY ARE LEAVING US? FOR THE YEAR OR MORE IT’S GONNA TAKE TO PUT OUT THE SEQUEL?’

So… as far as Infinity War goes? I really wish I’d skipped it.

It wasn’t worth my money, it wasn’t worth my angst, and it almost isn’t worth me writing this review.

Maybe if they’d released BOTH IW 1 and IW 2 at the same time, or within weeks of each other, they could’ve gotten away with that shite.

As it stands?

Nope.

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Final Fantasy 14 Geek-out

I’ve been a gamer since I was tiny.

Ever since pong.

I think I was six the first time I played a computer game of some sort. On an Atari. Yes. I’m THAT old. Shhhh. First actual computer was a Commodore 64.

So that means I’ve been gaming with some regularity for probably 35 years? I took a bit of a break from it, only playing games I could easily step away from while the kids were tiny, but in December a lovely person sent me credit to a couple of online gaming sites.

Blizzard, Steam etc. So a friend of mine suggested I try the ‘new’ (lolz, I was behind, okay? It wasn’t that new) Starcraft II. (I REALLY HOPE THEY MAKE A STARCRAFT THREE!!!)

It hooked me back into gaming so hard and fast and I played it through three times on different difficulty levels before starting to look for something else.

Now… you have to think about something. I played MMOs back in University, some 20 years ago, when there was NO VISUAL COMPONENT.

Back then, they were sort of like glorified chat rooms.

So when another friend suggested I try WoW I did the free trial, and yeah. Hooked.

I ran through my trial and never subscribed because there were a few things I REALLY didn’t like about WoW. Just starting out with MMOs, I was not interested in grinding through 100 levels just to get to the good stuff (new content). Then when the game developers made it so damned hard to PLAY as a newbie that I legit couldn’t play without my partner in crime. (hubs) it lost its magic for me. There are some things I miss about WoW, and I may take a break from FFXIV to go back to my Feral at some point, cause I really did love playing it, but… I dunno. Draenor drained me.

A couple of my other friends played other MMOs so they suggested Final Fantasy 14 next.

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Lolz, I think the last final fantasy I played was like 4? or 7 maybe? It had been a long damned time anyway.

I did the trial of FFXIV and I am soooooo addicted. I’m so very grateful people are sending me gift cards and crysta so I can KEEP feeding this addiction of mine.

Why do I love it so, though? What does it do for me?

Well, one, it’s just so flipping pretty. The artwork alone makes me happy when I’m playing the game.

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Two… it gives me the illusion of traveling. I hate to admit it, but between being disabled, poor as ever living fuck (I mean, our family looks UP to the poverty line and waves fondly at it.) I can’t travel.

I’d love to go to the Carribean, or visit mountains, or see distant lands but as it stands? I can’t. And unless I start selling a metric ton of books, I won’t ever be able to, so the game gives me that. The backgrounds are so gorgeous and realistic, the sound effects so lovely that it *almost* feels real. It gives me a sense of what it MIGHT be like if I COULD travel.

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The fantasy storyline is fun. If you come at me with the idea that poor people shouldn’t have fun, then I’ll come back at you with mental health statistics on why poor people, even more than wealthy ones, need some form of pleasure in their lives.

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Lolz, I’ve totally already figured out the storyline, I think I had by maybe 1/4 the way through the Main Story Quest line, but that’s irrelevant to me. I can still enjoy it.

I saw the twist around level 48 coming too. But I don’t care. I don’t need fantasy to always be unpredictable. This one being predictable (to me, I AM a writer after all, this is my stock in trade) is a comfort to me.

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There aren’t many surprises.

The artwork style for the combat and the drawing style of the animations is a particular style of anime type of illustration that I’ve loved since I was tiny. It’s so gorgeous! It’s flashy and fun and it lets me escape my not so great life when I need it most.

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It lets me pretend to have the body that I would have if I had a magic wand. (I play a gender bender, and he’s healthy and able to do things I haven’t been able to do in 20 years, like run, and climb and… yeah.)

When I get bored of fighting, I can go do a crafting mission, when I get bored of crafting, I can do a beast tribe quest (repetitive, but they give me stuff I need). I can eventually buy a house, (which I will likely never be able to do in real life) and I can hang out with other people who like to play it too.

I’m a solitary player for most of these games, but the chat function while playing is actually growing on me.

Lolz, I was joking with a friend of mine (one of the ones who got me into it) about that, because I was SUPER reluctant to try learning to talk to people on games, but I’m getting there. I’m starting to miss it when I *don’t* have someone to talk to when I’m playing.

I’m sure after I finish writing this that I’ll think of a bazillion more reasons why I love Final Fantasy 14, but for now… that’s enough. I’ve blathered for almost 1k words about it already.

I’m always looking for people to talk to while I’m playing, and those who won’t be complete asshats to me when I need to do the dungeons (I… am not good at dungeons, mostly cause I avoid doing them unless I absolutely have to). So feel free to look up my character. I’m Makara Aviyah on there, for now, (lolz, as much as I love it I eventually want to have an alt of each of the different races).

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You can find my very sparse profile on Enjin if you want it and I’m always so grateful for people who send me ways (game cards, crysta etc) that helps me keep playing because gods know I can’t really afford it on what little I make as a writer.

Sometimes… you just need a little escape from your life. For me, for now (and probably for as long as I can keep playing) FFXIV is that for me.

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And oddly enough, it actually seems to help when I’m stuck with the writing thing. Gaming has always sort of done that for me. But I’m finding that since most of my writing work is speculative fiction of some sort, playing in someone else’s conceptual world helps me come up with mine.

Did I mention that it’s pretty? Lolz.

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Oh… and you get to ride a chicken-horse. That eventually learns to fight with you. XD

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Did I mention that I’m addicted yet?

All images are from the Final Fantasy XIV A Realm Reborn website.

My username is KaelanRhy on the game, in case you want to find me that way.

I’m a broken, beautiful mess… am I safe with you?

Um… all sorts of CWs on this. I’m gonna be frank.

I am. I’m broken. I’m like one of those Japanese Kintsugi potteries. Shattered, broken by life, and somehow glued back together with precious stuff… the stuff of my soul, maybe.

Sometimes it’s been the kindness of friends. Regardless, I’m broken. I think with the Kintsugi work, the end result is stronger, but for me? It just makes me more fragile.

I crack, I break, I hurt too easily. It’s probably because I’m autistic that I don’t see it coming (and gods, as many times as this has happened, you’d really think I’d get a clue) but I don’t.

I never really know what will make me shatter again. I have an inkling, I mean… I know that abandonment is a HUGE issue for me.

I have trust issues to start with so when I let someone in *at all* anymore it’s a HUGE act of trust for me. I mean… HUGE.

And that absolutely applies to social media. (Which, because I’m disabled, is close to my ONLY social interaction, so yeah, it’s important to me.) Some people seem able to take social media as this… take it or leave it light hearted thing.

I don’t seem to be able to do that.

I’m not certain if my complete lack of a ‘middle ground’ is an autistic thing or not, but for me it’s really all or nothing.

I’m either invested in something or someone, or I’m not… at all.

I know some of my friends regard this as unhealthy, and it probably is, but at this point in my years, it’s just a me thing. I think I’m too old and set in my ways to change it, if I even *could* change it.

I support my ‘mutuals’ (people who we follow one another on twitter/insta etc) with everything that I am. I review their books, crow from the heavens if I liked the books a lot, I recommend the books. Same goes for artists etc.

But I stop doing that if they hurt me.

I mean… any creativity field is an absolute quagmire of struggling to get by, so I do what *I can* to help my mutuals.

And no… mutuals don’t automatically mean ‘friends’ either. Not to me, anyway.

But they do mean something more than internet strangers as well.

I don’t even know where I’m going with this. I’ve had to take a hiatus from twitter, again, because I’m feeling so fragile. I can’t leave it completely because all of my income comes through it, so I’ll still maintain my presence *a bit*. It won’t be like it usually is for me, not til I feel better.

I just… I wonder how much pain I can take? I wear my heart on my sleeve and I give any relationship I commit to 150%…

Yet I rarely receive that in return. But as one person suggested to me, there is *nothing* that people do that is *at all* personal. Sometimes people gotta do what is right for them, regardless of the harm they do to another.

It is an innate truth. One I learned somewhere along the line, but I’m grateful for the reminder.

People are gonna do what they’re gonna do, but every time something like a mutual leaving without giving me a heads-up (one I’ve started to get close to offering that kind of friendship to) well… it breaks my faith in humanity one little bit more.

It makes me look around at my circle of people I actually *do* regard as friends and wonder which one of them I’ll prove to be too messy for next.

It makes me wonder which one I’ll drive off next time I’m autistic on social media, or next time I fuck something else up (which I probably don’t even realize is a fuck up because allistic rules MAKE NO SENSE!)

And that kind of lack of trust in people who do, by all evidence, seem to want to be close to me, seem to want to have me in their lives… what kind of a toll is that taking on people that I actually DO think of as friends?

Having a friend not trust you is not cool, it really isn’t. I hate that feeling. So what is my broken assed self *DOING* to my friends when I have moments where I’m looking around and wondering if I can trust any of them?

But it’s just me. I’m just *that* broken. I’ve been abused, harmed, shat on, attacked and hurt so much in my life that it’s so easy, too easy, to look for it coming at me again.

To expect it.

You kick a dog enough, it’s going to start expecting people to kick.

I expect everyone to hurt me, and that is just all kinds of fucked up, isn’t it?

I hope my actual friends understand this about me. That it’s really not a *them* thing, it’s totally a *me* thing.

But how much of my *me* can they take? I’m intense. I know that. It’s caused problems for me my entire damned life.

I’m, in essence, absolutely broken… and I ask myself if I’m safe with any of my friends far too often.

Not cool, Kae, not cool.

 

 

A love letter to my autistic children-by KaelanRhy

So many of these ‘autism martyr parent’ books are positioned as a ‘love letter’ to their autistic kids.

I’m autistic, I feel love, very deeply and the way I feel about my kids, who are both also autistic, doesn’t even come close to what those people write. So. Just to put it out there (and with their express permission) this is how *I* would write a love letter to my kids.

Dear 5 and 10,

You may not know it yet, but you are the brightest, most amazing things in my life. You teach me something new almost every day. You bring me laughter, joy, deep-thought, and so many experiences that I could never enumerate them all.

Whether the ‘something new’ is something I didn’t know about myself, something I didn’t know about you, or some sort of random fact I didn’t know about dinosaurs (in your case 5) or how manga is drawn and what undertale is (in your case 10)… I know, waking up every morning that life with you two will invariably teach me something new.

I love that so much about you both.

5? I love storytime at bedtime, because we learn something new together then too, your choices for stories are usually encyclopedias of some sort, we’re working on the illustrated encyclopedia of animals with you, and the joy you express at all the new information we find out every night is a highlight of my days.

10? You’ve moved on from having us read your stories now, and it’s bittersweet in a way I think most parents probably feel. I’m so proud that the love of reading to yourself has finally bitten you, and that you’ve found fanfic and horror stories that you love all by yourself. You make me so proud on a regular basis, and I try to make sure you know that.

I do miss the days when we got to read stories to you. But hopefully, our commitment to early literacy has helped you find your own joy in learning and love of reading.

Regardless, it’s wonderful to talk to you about the kinds of books and stories you love, and even what you don’t love about them. It’s a beautiful thing for me to share with you, and I thank you for that.

One of the things I love best about both of you is that given time and support, you get to where you want to be. One of my favorite examples of this with you, 5 is that you love chocolate milk. One day, you decided you wanted to learn how to make it yourself, and after just one lesson, you were making it for everyone.

You continue to do this to this day, and it’s such a wonderful thing to see the joy in your eyes when you ask if someone else in our family would like a glass of milk.

10? Gaming with you is so much fun, I miss the days when you wanted to game only with us, but at the same time, I’m so happy that you’re finding friends of your own to game with. Those kinds of bonds and memories will be wonderful ones for you as you get older.

I know that the memories of the bullying you faced at your former school are fading, and I am so grateful for that. Even with how much it cost me personally to move, you my dear, are well worth any cost I could ever bear to have you in my life.

It’s nice, to know that you’re going to school in a safe place, where they actually have no tolerance for bullying. So many places pay lip service to that, but seeing you thrive at a school that actually backs it up is so amazing.

Even if you do hate math. It’s okay, I hate it too.

I love how thoughtful and caring both of you can be, when you’re not pulled into a special interest. When you are, I love that I need to remind you to eat, because in so many ways, you’re so much like your dad and me.

I look forward, so much, to seeing what you both will grow up to become. I hope that by then, the world is a better and safer place for autistics. And I promise both of you, even if you won’t read this until you’re adults, or maybe never…

I won’t stop fighting for you. I love you both with all of my heart and I celebrate everything that you are. Forever.

Love- Mama

 

Ongoing saga

In the ongoing saga of how I’m being bullied and harassed by Whitney Ellenby and her husband Keith, I’ve received yet another email, AFTER ASKING THEM TO STOP.

She has said that she’s reporting me to Twitter, Goodreads and ‘appropriate online authorities’ that *I* am in direct violation because my EMAIL tells her it’s going to be her fault when other parents hurt their kids.

My heart is doing a hummingbird impression in my chest.

How can these people think it’s okay to keep harassing me because I hated their harmful book?

Email text that I responded to her with. (I’m trying NOT to respond to them, but I NEED THEM TO STOP.)

Since I’ve posted that nowhere except my website. It violates none of those policies. Do you seriously think you’re going to manage to bully me and harass me into shutting up? You’re just making me more determined.
I have asked you, repeatedly to stop contacting me. You are now harassing me as well as bullying me.
STOP HARASSING ME. STOP BULLYING ME.
YOU ARE NOT ALLOWED TO HARASS OR BULLY SOMEONE WHO HATED YOUR BOOK.

In the interest of transparency

CONTENT WARNING mention of panic attacks, abuse of autistics, mention of email harassment, ableist language as a self-label

I reviewed a harmful book by an autistic martyr parent. It’s gone viral, so you may have heard.

Here is the review, here is the twitter thread.

When this page came across my feed, the author claiming that the book itself proves she didn’t abuse her son, I was motivated, out of stupidity I guess, to reach out through her comment section to let her know I HAD read the whole book and found it even more horrifying than the WaPo article.

She emailed me, implying that I had obtained the book illegally.

In the interest of transparency, and honesty, I’m sharing all of the text I have sent to this woman, and her husband.

These are my words, so I’m allowed to share them. I would DEARLY love to share the emails both she and her husband have since sent to me, because oh my dear gods they have me in tears and a panic attack. Both last night, and again this morning.

Suffice to say that they implied I’d gotten the book illegally, that I didn’t actually read the book, that I should REREAD that travesty, that I said I knew their son better than they did.

Then I just got one from the husband claiming that *I* a confirmed autistic am OBVIOUSLY not autistic, that I am probably a Russian internet troll bent on hurting good people like them.

So. Before I go close myself in the bathroom and rock myself calm. Here is the text I sent via the author’s contact section on her website.


What I sent to Ellenby via her contact form on her website in response to her defense of the WaPo article.

Oh? I’ve read the whole book now. Your book paints you as JUST as abusive if not worse than that article described. There were times in the book that you admitted to wanting to give your son a tranquilizer, which you had on HAND to go to a birthday party.

You really need to pull that book. It’s not out yet, so you still have a chance to repair this damage before it’s totally done. It’s harmful to the autistic community and it’s incredibly harmful to your son.

People, autistic people are already reading it and being harmed by it. I’m one of them.

Parents of autistic kids are going to read it and think that’s the best way to do things!! It’s not. It’s not even CLOSE.

Please rethink the massive amount of damage you can and are doing.

You’re wrong. You are VERY wrong.

These kinds of books need to be stopped.

You said you didn’t want to write another autism parenting book, you failed so hard on that. The only thing you did better? Was to insult autistics and provide graphic accounts of abuse of the disabled.

I wish you the best of luck, I think you’re actually a rather talented author if you actually wrote something you knew anything about. You so obviously DO NOT understand autism. Not if you could write those things. You just don’t.

By the way? You read as autistic to me. Female autistics don’t show the same signs, and we’re JUST as common as male autistics. The data and research is badly skewed.

You and I aren’t far apart in age, you wouldn’t have been diagnosed at a young age any more than I was.

Please… Please pull the book. You’re doing untold amounts of harm.

I don’t want contact with you, after reading that book I don’t much like you. But I think you need to know that people HAVE read the book, and they feel JUST the same as after reading that article.

That book HURTS people. Autistic people, like your son. Like me. Like my children, like many of my friends.

It’s not going to get better.


And here is the text of the email I stupidly responded to her with. My only defense is that it riled me to have it implied that I illegally obtained a book when I got it from NetGalley and the publisher.

If someone knows if I’m legally allowed to share the text of the emails they sent me, please let me know.


With as much grace as I’m capable of showing to someone who would hurt a child as much as you have, let me explain some things as politely as I possibly can.
I received a copy of your book from NetGalley and your publicity firm. I requested it after seeing that bloody horrible article in WaPo. I’m autistic, and the mother of autistics, and I am SO SICK of autism parents writing like they have a clue about what they’re talking about, because honestly, most of you don’t. I review books like yours, HOPING one of you is going to prove me wrong. I mean, I actively HOPE one of you is a decent person. So far? None of you have been. I reviewed TO SIRI WITH LOVE and have been on Bustle and in the NY Observer because of my work on it. I imagine my words will be picked up about this book too, I’d be very surprised if they weren’t. I’m a reasonably well known autistic advocate in online circles.
I’ll attach a screenshot of the letter from your publicity group at the end of this email, since you seem to be implying I didn’t come by the book legitimately.
Look, I get it that you’re a new author. I’m not. I work in publishing, the way this works is that ARCs (Advanced Readers Copies) are put out from the publisher around a month in advance, Netgalley and Edelweiss are the most common places to ask for a copy. We reviewers can also email the publisher to ask for a copy of the book. The idea is to drum up publicity for the book, in hopes that the reviews will be positive. The deal is that we reviewers provide an HONEST review, which frankly you aren’t going to like because it’s not favorable, in exchange for a free copy of the book.
Now, using your own methods… (Note, she numbered her demands that I provide quotes from her own book, I don’t know why, to prove I’d actually read it maybe?)
1) Do not talk down to me, I’m autistic, I’m not stupid.
2) I’m not wading through that filth you call a book again to get you exact quotes. It’s bad enough I actually read the whole thing once, I will certainly never reread it. And if you doubt I did? I invite you to take a look at my live-tweeting of it. https://twitter.com/KaelanRhy/status/969089091051569152 I’ve quoted you there. A lot. Properly, as I am actually allowed to quote words from books as long as I source the book/author. I’ve also given my educated, and sometimes salty opinion of what I thought of your words. Since you seem to need a reminder of the words YOU actually wrote… It was right before the birthday party, you said something along the lines of seriously considering giving Zack a sliver of tranquilizer before the party. You said you’d given it to him several times before and it had relaxed him.
3) I have no issue with autistics using anti-anxieties, nor allistics for that matter. If the doc prescribed them to Zack, then maybe he needed them. I don’t honestly know, nor do I really care. How you can possibly think I’m insulting my own people by being upset that you threatened to drug your son into compliance for a birthday party is beyond me. Honestly, that’s how it read. It really did. I’m not the only person to have thought so. There are currently at least two other autistics I know of reading and tweeting, unfavorably, about your book.
4) As far as intent goes, isn’t there something you lawyers love to say? Something to do with mens rea? I’m a historian and a teacher, not a lawyer. Intent does not equal result. The intent behind your book may have been good. I don’t know you, & don’t really want to. The result is OVERWHELMINGLY that you ARE hurting autistic people. You have hurt me. I’ve been crying, off and on for two days as I read that damned book. I’m still awake at 2 am my time, often glancing in at my children, who are both autistic, and wondering how the hell someone like you could publish those cruel and often nasty things about a child like them.
Honestly, how could you? How? Do you not see what those words will DO to your children when they read that book? If you don’t? I could tell you, but I highly doubt, from the tone of your message that you’re even close to listening to someone you deem as less intelligent and less worthy than you.
5) Stop with the PFL please. Autistics, by and large, HATE IT. It demeans us. If you knew ANYTHING about autism, you’d know that. Same as you’d know the bloody difference between a meltdown and a tantrum. They aren’t the same thing. Do you have any idea what a vibrant community we have online? I doubt it.
6) I still can’t believe, even if you don’t accept that your book will and already has harmed autistic people, that you CAN’T see how much those words will harm your son. I don’t understand that.
7) A thorough reading (she said that a thorough and accurate reading of her book would prove her point, as if I *hadn’t* done so) of your book made me throw up. It made me almost meltdown, that a person like you could be at all involved with autistic people, and are likely autistic yourself… it sends chills up my spine and makes me physically ill. It really does. I have no idea the sheer amount of harm you are doing with your ambassador’s group, and because you so badly misunderstand autism? You don’t either. I think it’s a great idea, but do you employ autistic people to help you? Do you know that our rates of unemployment are around 85% regardless of how well educated we are? Do you have any idea how close to poverty most of us live? Do you care?
8) An accurate reading of your book makes it quite clear that you hate your son and prefer your daughter. It makes it QUITE clear that you do not understand autism. For gods sake, you use PFL, refer to meltdowns as tantrums and quote crap from freaking auti$m $peaks. You seem to only understand the lies that Auti$m $peaks spouts, and people like Suskind. Do you realize that almost everyone in the autistic community thinks he’s a joke, or a fraud? There are some few allistic people who write about us that we like. It’s because they listen. He is not one of them. You will not be either if you go on to publish this book.
9) Do not besmirch my honesty or integrity. If I say I’ve read your book? I have. From page one to the very last page.
10) You can’t control how people will view your book, how they will read it, and you saying you’re sorry for how it affected me while at the same time telling me I misunderstood it smacks of so much arrogance. You really won’t get far in publishing, at least with the author side of things, with that attitude. The autistic community is HUGE online, especially on Twitter. Telling us we’re wrong for our very valid interpretation and feelings about your book? It’s really not a good look. You not being able to control how people will view your words is the risk you take as an author. I believe your intent was good, but your result failed. Badly.
11) I’m not usually the type to talk to the authors I review, I’m not even sure why I did or am. Perhaps I’m truly hoping you’ll listen and pull the book before it causes even more damage. Right this second I have autistics telling me they’re having panic attacks and flashbacks to their own abuse, just by reading my quoted words. They haven’t even read some of the worst stuff in the book! I have. THAT is the kind of harm I’m talking about. If you read my tweet threads, read the comments replying to it too.
12) Yes, you do make it clear that your harmful methods, which are absolutely abusive, are your idea alone and against medical advice. But the fact that you make it seem like they worked completely for Zack (you do realize that later in life he’s likely to suffer MASSIVE ptsd from that, right? MANY of us do) are going to have a clear result. What exactly do you think desperate parents who don’t understand autism, who believe it’s a horrible, disfiguring disability that truncates families and reduces enjoyment of life… all of the very nasty things you said in your book… what do you think they’re going to DO when they read that? They’re going to torture their kids in just the same way you tortured yours. And the outcome won’t always be as positive. So it worked for Zack. I’m happy for you both, there are OTHER better methods that your book doesn’t even mention. Those desperate families are going to harm their kids, and it WILL be your fault. It may not be legally anything to do with you, but morally? It’s on you. You can’t escape that. I think that’s probably why I said something because the book doesn’t pub for another month or so. You DO still have time to undo this. We, as authors, have a deep and abiding moral responsibility to make sure our words don’t harm anyone or cause someone to harm others. If it’s pointed out to us that they do? The right answer is to apologize and repair, if you can, the harm you’ve done. Period. I take my responsibility as an author of touchy subjects VERY seriously. It’s totally up to you how you take yours.
13) You definitely implied, if not outright claimed, that you’re an expert on Autism several times throughout your book, and no, I’m not wading through it again to find the quotations. I’m sure you’ve got a copy of it, you can do a word search yourself. You claimed to be a scientist once too. Also…did you NOT write your bio for Amazon? We authors usually provide the text for those. Here… let me cut and paste it below to make it absolutely clear that I’ve actually read it. Since you doubt my honesty so much.
Of course, you have a right to speak for yourself and share your story and your viewpoint. You also have the right and responsibility to bear the burden of the resulting harm. I just wanted you to know how very harmful I and many in the autistic community ALREADY find your book. Once it publishes? You have no control anymore. And you very likely WILL be taken to the cleaners. Diversity advocates on Twitter are ALREADY calling for it to be boycotted.
Then again, books like yours get all sorts of accolades and it took me forever to find a decent publisher for my work. I doubt that washington post will even bother to print my review or what I’ll write up to send to them about your book. I don’t have connections you see, and I’m autistic. I’m out and proud about that, so to most people, my opinion doesn’t matter. Because I’m stupid.
Books like yours don’t help that, you know.
As an aside, I can’t believe that you’re an author and not on Twitter. I really can’t believe it. The writing community on there is almost as rich and varied as the autistic one.
Now. I’m tired, I’m still hurting beyond belief at reading your book, and I’m going to try to go to sleep. I very STRONGLY urge you to pull this book. You have no idea the amount of pain you’ve already caused. I’ve pasted the promised proof below.
I think it’s best we don’t speak again.
Kaelan

Pasted bio from Amazon, I bolded the parts where it claims she’s an expert.

About the Author

Whitney Ellenby is a former US Department of Justice, Disability Rights attorney whose writings have been published in The Washington Post, a law review periodical, and the U.S. DOJ website. She is the author of “Divinity vs. Discrimination: Curtailing the Divine Reach of Church Authority,” Golden Gate University Law Review (1996)), as well as an amicus brief on behalf of the U.S. DOJ Disability Rights Division regarding discrimination against mobility-impaired individuals in violation of the Americans with Disabilities Act (ADA). She is the proud parent of a son with Autism and founder of “Autism Ambassadors,” a charitable venture through which she runs exclusive recreational events for over 600 families impacted by Autism in the Washington, DC/Maryland area, including a Sensory-Friendly showing of the world-famous “Gazillion Bubbles Show.” She is an expert on Autism and has testified before the Maryland Senate on disability-related issues, is a member of the Developmental Disabilities Advisory Council for Montgomery County, MD and serves on the University of Maryland Autism Spectrum Disorder Advisory Board. Whitney’s expertise is steeped in her extensive disability law background, personal experience with her own son, and over 10 years of serving children, teens and adults with Autism of all ages through her “Autism Ambassador” events. Her monthly “Ambassador events” have been featured in local t.v. news, The Washington Post, Bethesda Magazine, and The Bethesda Gazette. Whitney was most recently honored with an “Autism Awareness Proclamation” and “Community Leader” award for her advocacy and dedication to the disability community of Maryland. She has what she describes as a “healthy obsession” with all things Autism.

I then pasted a screenshot of the email I received from her publicity firm. I can’t seem to figure out, as shaken as I am, how to paste that here. I shared it with her to prove where I’d gotten her book, since she made it seem in her email that she highly doubted I’d received a legitimate copy or even read it.
I woke up this morning to a letter in my email from her husband, of all people. He was defending his wife, telling me the book was beautiful and defending their treatment of their son. This is the text I sent back to him.

The very fact that you use functioning labels means you have very little idea of what it means to be autistic. And as far as I and many other autistics are concerned? Have no business working with us. I never said that I knew Zack, in fact, I said that I didn’t. I don’t want to know any of you. I certainly do not want to see any of your names in my inbox again.
Assuming that because I type well and communicate well with words on a screen means that I cope well with all aspects of life in an allistic world again proves that you have no idea what it means to be autistic.
Was I condescending? Possibly, it wasn’t my intent, any more than it was your or your wife’s intent to harm, what, at this point, is thousands of autistics. It will be more when that book comes out. She implied that I may have gotten the book illegally. I tried, in my very blunt, autistic way, to explain how this business works.
Were your actions and inactions abusive to your son? They certainly read that way. Not just to me, but to the thousands of other autistics who have read my review threads, to obviously, given the defensive tone on your wife’s website MANY people who read the WaPo article as well. Your intent and your love for him does not matter. It really doesn’t. ACTION is what matters, and those ACTIONS were abusive. ABA itself is deplored as being abusive, most autistics wouldn’t use it on a dog, you know. In fact, if those methods themselves were used on dogs, the person doing them would be reported to animal control.
If Zack is around 16? He won’t be showing PTSD from that yet. We usually don’t because we internalize it. It usually hits sometime in our 20s or 30s. ABA alone causes it, the rest of the things you guys did to your son? Regardless of your intent? It will only exacerbate it.
In fact, ABA breaks child labor laws, but because it’s ‘therapy’ it’s okay.
Your wife’s ‘beautiful’ book is going to harm so many more autistic kids. Desperate parents are going to do EXACTLY as I said they will, because you two put yourselves forward as being an authority on autism. Legally, it’ll have nothing to do with you, because you’ve both CYAd. Morally? That harm is on you both.
Good luck. Do not contact me again. Seeing either of your names in my inbox sends me into a panic attack. I only reached out in what is so very obviously a vain attempt at trying to halt this train wreck before it harms more autistic people because I care about people like me.
And I’m so sick of people like you hurting us. I have autistic kids who have to live in this screwed up world, and people like you, who claim that books like that are beautiful, and good, and needed? You make it worse.
Goodbye.

There’s been another letter from him, claiming that I’m a troll and not-autistic (I knew that was coming, said so in my thread) but I’m actually smart enough not to respond to that.
I am a shaken, panic-stricken mess right now. I’m crying, and I HATE to cry.
Authors? DO NOT RESPOND TO REVIEWERS.
Reviewers? Be smarter than me and don’t try to reach out to authors to stop their harm. I’m an authenticity reader for autism and… I thought maybe she’d listen. Mea culpa.

 

Review: PETER RABBIT the movie, by SONY

THIS REVIEW HAS SPOILERS

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First, I don’t tend to review movies, because I’m much more of a book person, and the movies I *would* review I tend not to, because I don’t want to spoil them for people who can’t see them right away.

My kid wanted to see Peter Rabbit, so, given that it’s Family Day here in Canada I took  Mr. 5 year old.

If there’d BEEN another kids movie playing that he hadn’t seen, I would’ve taken him to that because I’d heard some really unpleasant things on Twitter about Peter Rabbit.

Hence this review.

Twitter, and the people who called it out for the reason they called it out for, were wrong.

So, what *I* heard on Twitter was “Don’t support Peter Rabbit because they make fun of people with life-threatening allergies.”

AND “Peter Rabbit has the bunny characters throwing items of allergy at someone with a deathly allergy for funnsies.”

And because I’d never been steered wrong by the people I heard it from, if my kid hadn’t so desperately wanted to see it, AND it hadn’t been the only kid-appropriate movie playing now, I would’ve avoided it. Based on that I wouldn’t have seen a decent movie.

It wasn’t THE BEST MOVIE EVAR!, it had some major issues, but it WAS good comedy if you like American style slap-stick comedy. (And I so rolled my eyes at how VERY AMERICAN some of the humour was.) My kid really enjoyed it, and there were enough parental jokes to keep me entertained as an adult. Especially the rooster, omg, the rooster was freaking hilarious.

Firstly, to address in no uncertain terms the allergy issue. (Last chance to avoid SPOILERS)

Allergies, especially life-threatening ones, are ABSOLUTELY NOTHING TO BE JOKED ABOUT.

But that’s not what the movie did. It didn’t even come CLOSE to that, so I really question where the hell the idea I saw on Twitter originally came from.

I have allergies, my kids have allergies, and though none of ours are life-threatening, they are not a thing to take lightly.

We as the viewer are made aware that one of the main characters, Thomas McGregor/Domhnall Gleeson, has a life-threatening allergy (anaphylactic reaction, his throat closes up/he can’t breath) to blackberries). I recognized him from Star Wars, not Harry Potter, that’s how bad of a fan-by I am for anything Harry Potter. (I really don’t care for HP, don’t sue me, I’m broke.)

The title character Peter overhears that Domhnall’s character/Thomas McGregor (who is the descendant of the nasty McGregor from the Beatrix Potter tales, acted, superbly by Sam Neill) tell the love interest of the story that he’s allergic to blackberries.

This is a very multi-layered story peeps. It’s a romance, on top of, and perhaps MORE THAN anything else. Despite it being a kids movie. (So if you’re ARO/aromantic, maybe avoid this one, it hits all the points of ‘love is everything’.)

Now. Peter RABBIT is much more than a Rabbit. He’s clever, he’s wiley, he’s a freaking asshole.

He’s also coping with the death of both parents and being the eldest brother to his three sisters.

Thomas McGregor is just as broken in his different but similar ways.

So when Old McGregor has a heart attack chasing Peter in the garden (MASSIVE CONTENT WARNING ON DIETARY JUDGEMENT CALLS) the lands, manor home, and gardens (charmingly represented true to form to what I recall of Beatrix’s paintings and stories) it passes to Thomas.

Via the trope of an unexpected inheritance.

Thomas goes to the manor and finds it filled with animals, which you can see in the trailers.

Lolz, he screams so very well. My goodness.

Anyway, the allergy issue comes into play when after many shenanigans, Peter and Thomas get to the point of trying to kill one another for real.

Thomas is ACTUALLY trying to KILL the rabbits, Peter is defending, what he regards at this point, as both his beloved mama (the love interest, Bea. played by Rose Byrne) and his lands (which Thomas McGregor, in the way of humans, owns).

I don’t know about you? But if someone is trying to kill ME AND MY FAMILY, allergies would be fair game as a weapon.

You can feel free to disagree with me on that? But this great big human with a hate-on for wildlife is coming after me, I know he’s allergic to blackberries, I’m going to slingshot them into his mouth at the first bloody opportunity.

It was NOT as it’s been portrayed on Twitter.

There is a graphic reaction to allergies, and Thomas has to scramble for his Epi-pen.

He survives, and (unrealistically) tears ass after Peter again.

Not for funnsies. For self-defense. And honestly? If you’re the abusive type who says I/a character can’t use ANY weapon against someone trying to KILL YOU AND YOUR FAMILY as self-defense, I’m not a person you want to have something to do with.

Now on to the rest of the movie.

This is a romance! I didn’t expect that, and yeah, if the whole ‘love cures all ills’ aspect that allos love to shove down our throats at every opportunity bothers you, don’t see it. I’m grey-aro, but all it does *to me* is make me roll my eyes.

It’s actually a sweet romance with elements of fuck-it-all-up and still redeem it at the end.

Which surprised the hell out of me. The actors really did a superb job with that too. (It’s sweet, so there’s no sex/sexual tension to avoid for my asexual peeps as well.) Content warning on one awkward kiss.

Peter is VERY  Americanized for a British childhood story character. BUT, to be clear, the story of the movie takes place after the death of Peter’s mother-bunny. I never really read the Beatrix Potter stories as a kid, (books were such a luxury to us, we were THAT poor) but I think the fresh take helped, it’s a continuation of the tales. (I could be totally wrong, never actually read them.) Rather than a retelling.

The animation for the animal characters was freaking phenomenal and the movie is worth seeing JUST for that.

I’ve been around since before Roger Rabbit (Gods, some of you are so young you’re not going to know what I mean.) So here is some of the style… youtube of the animations of Roger Rabbit.

Compared to many of its predecessors, Peter Rabbit stands out, it’s amazing as per the melding creativity of live action and animation.

There were several lines in the film that made me slightly uncomfortable as a domestic abuse survivor, and I wasn’t happy with how Peter treated his sisters. (Seriously, when are writers going to learn to develop ALL of their characters as well as they do the primary ones?)

Writing wise? This is a damned good film.

Acting wise? Freaking phenomenal, I might be a fan of Domhnall’s now.

Creativity/animation wise? AMAZING.

American humour? Gods could we please find a different way? (I’m American btw, even if I’m expat.)

So. In short (hah! I can’t write short to save my life, and yes I amuse myself) that’s what I thought of Peter Rabbit.

Twitter was wrong, it was a good movie and my kid loved it.

Soft-blocking can be ableist, so what?

I get in so much trouble for this idea. I have people who unfollow me because they tell me I’m being harmful by pointing out that soft-blocking can be ableist.

I have people arguing with me because it’s ‘just what people do’ and no more harmful than ghosting someone in real life.

Spoiler, ghosting someone in real life (unless, obviously and I shouldn’t even have to say it they’re an ACTUAL danger to you) is ALSO HARMFUL, and hurtful too.

Soft blocking can be ableist. I feel it’s actually INHERENTLY ableist simply because it fits the definition of an action which not everyone is going to be *able* to understand.

If everyone isn’t *able* then the action that causes harm is inherently ableist.

It really, really is. Whether we like it or want to admit it or not. Whether it’s your favorite choice of ‘protecting yourself’ or not.

It’s harmful, it’s ableist.

Some definitions and terminologies. I’m writing about this phenomenon on Twitter, since that’s the place I’ve seen it most.

A follow, on Twitter is where you click ‘follow’ and you’re able to see that person’s tweets.

An unfollow means you click unfollow so you don’t have to look at the tweets anymore.

A ‘mutual’ is a mutual follower, someone who you follow and they follow you back.

A block is where you click ‘block’ and the person you have blocked can no longer see your tweets.

First… Soft blocking is the ACTION of hitting the block button on Twitter with a mutual or someone who has followed you because you don’t want them following you/seeing their tweets.

OR you want them to unfollow you without it being a stink about it. (I’ve been told it’s possible on other social media outlets like Tumblr, but I don’t use those so don’t know how it’s done there.)

There are as many reasons in the world to soft-block someone as there are people. SOME few people have reasons that deal with self-protection.

People should ALWAYS protect their mental, physical and emotional health. That is an absolute iron-clad rule. If y’all twist my words as meaning anything other than the ACTUAL words I’m putting on the page, that’s on you.

Oh, and that’s harmful.

Sometimes the methods you use to protect yourself harm others. There is really no way of getting around that. It is a fact when it comes to dealing with intersectionally marginalized people.

Second. I think I need to discuss what ableism is.

The simple definition is that it’s discrimination in favor of able-bodied people.

It gets a lot fuzzier when you’re dealing with intersectionally marginalized people, including those of us who are disabled.

So many of us are disabled in one form or another. Many of us have PTSD from so many things. (I certainly do, I’m diagnosed with C-PTSD and it fucks my life up A LOT.)

The deeper definition of ableism is this, I’ve pasted the definition below.

Ableism is the discrimination or prejudice against people who have disabilities. Ableism can take the form of ideas and assumptions, stereotypes, attitudes and practices, physical barriers in the environment, or larger scale oppression. It is oftentimes unintentional and most people are completely unaware of the impact of their words or actions.

Shall we dive even deeper?

We could. We could add on the ideas of privilege to that. Who has more power? Then even deeper, who has more PERCEIVED power.

Have we gone down the rabbit hole yet?

Here. We’d better take some carrots for a snack.rabbit-2505034_1920

Let me state this unequivocally. Soft-block to your heart’s content. It’s your space, do whatever you want with it. You SHOULD curate your space as you want/need to.

We all should.

Which includes me. When someone I KNOW knows that I have a problem with soft-blocking, AND they do it any way I’m well within my rights to block and not do business with that person.

For me, that means I won’t read or review their books. I won’t buy them.

Now, the reason I HAVE to do that is self-care. If they KNOW I have a problem (because it harms me) with that action, then they do it anyway, I CANNOT trust them.

So I’m sure as hell not doing business with them.

I block and blacklist. People don’t like that, but guess what? It’s my space. I make the rules. If that gets me a rep of being a bitch? I can live with that.

I HAVE to live with that because I’m a very, very broken person with regards to mental health.

You don’t like my rules of treating people decently and trying your best not to harm others in your words and actions?

Of apologizing and owning your shit when you fuck up?

Of respecting boundaries?

I’m not someone you want to work with.

So. Soft-blocking is curating your space as you need to.

I’m not telling you not to do it.

I *am* saying it’s inherently ableist to do it, if you’re neurotypical or abled.

An argument could be made that it’s ableist of me to share how badly it fucks with my head.

To be soft-blocked, I mean.

The argument for *me* being ableist by sharing how badly it messes my head up is that guilt comes into play. By sharing how badly it upsets me, I could technically be putting pressure on people not to soft-block.

I really don’t care if you use a harmful tool to protect yourself. You do you. Your guilt is the price you have to pay for that. I guess that’s too honest for most people though.

*Your* guilt is not *my* problem. It’s not *on me* (the one being harmed) by your action to absolve you of your guilt.

Hence it’s a long stretch to call me sharing my feelings and educated opinion on the realities of soft-blocking and the damage it can and has done ableist.

But it *could* be. A skilled debater or manipulator can make someone absolutely certain the sky is green with purple polka-dots.

The only thing that makes it *not* ableist for me to do that is that it’s also a self-defense mechanism. It’s selfish, but it’s not ableist in that scenario.

Life is not, much as many people would love to think it is, a black and white construct of right vs wrong.

For *me* soft-blocking is wrong. It causes far more harm than it could *ever* ease.

For others, it’s a no big deal, it’s an ‘I just don’t want to confront this person enough to tell them I don’t want to follow them anymore.’

For others, soft-blocking is a self-protective mechanism IN ITSELF. They feel safer soft-blocking than they do just unfollowing.

(I don’t pretend to understand that, the safest way to not see people’s tweets and to signal you want nothing to do with them is to either unfollow or block them. Period.)

But I *am* autistic and I *do* favor bluntness over all your allistic mind games. Y’all can play those. I don’t and won’t.

Now. The reason I’m talking about soft-blocking and sharing my reactions is because *to me* (and probably people like me) it causes PTSD trigger episodes.

I’ve been gaslit so freaking much in my life that any little hint of anything that can make me doubt my memories, my experience, my thoughts… it’ll send me into a downward spiral where I’m left touching real-life objects to assure myself that they’re real. Holding my kids and doing all sorts of things slowly, just so that I can know it/they are real. That I’m actually in the space/time that I’m in.

THAT is what soft-blocking does to people like me. And the number of responses I get to this subject anytime I talk about it, saying something along the lines of ‘that happens to me too!’ mean I’m by far and away not the only one this practice is affecting badly.

Harmfully.

If someone is soft-blocking as an act of ‘fuck you for saying it’s ableist’ (I’ve had this happen a lot) it’s kinda obvious what the motivation is, you know?

It happens most from people who are on the younger side, FWIW. I guess I can’t hold it against them. Their brains aren’t done growing yet. (Seriously, medical fact, your brain isn’t mature as far as action/repercussions/risk assessment until you’re around 25, go ahead and look it up if you want. It’s why your car insurance is higher than mine.)

So what about what I said earlier? What about privilege? How does that play in?

I look white (I’m not, but I sure do look it) so I automatically have more privilege than anyone who is visibly not-white.

But when both people look white, that privilege is removed.

I’m unemployed, (I work for myself, and make very little money) so anyone who is employed or gets a regular disability payment is automatically more privileged than I am.

If you’re healthy, have a good income, if you own your home vs rent, there are SO many socioeconomic and anthropological factors that can go into your actual level of privilege that it pays, I think, to be cautious in how you act/react and what actions you use to protect yourself.

In the age of ‘me too’ and allegations of sexual assault being everywhere, soft-blocking is a viable self-protection tool for many. But like any tool, it can be misused and that particular tool has really sharp edges that can hurt both the wielder and the one it’s wielded against.

(I’m a sexual assault survivor, so I can almost see why it would work for people. I don’t quite, though.)

But the gaslighting I’ve been through has scarred me deeper than the sexual assault. I react and have stronger PTSD triggers to anything resembling gaslighting than I do to talk/reading about sexual assault.

This is not the case for everyone. If my words or actions have hurt anyone in those shoes, I do apologize. I’m trying to educate on the results of a harmful behavior that has and does cause damage to people. Including me.

I still don’t agree with people insisting that soft-blocking is harmless. Because it just isn’t.

An anecdote from my own life. If you’ve been following my blog for a while you may recognize it.

Last October (I think?) I was repeatedly soft-blocked by someone I had more privilege than.

I did NOT understand I was being soft-blocked. I didn’t even know it was possible. I wasn’t able to understand why someone would do something that (seems silly to me) when blocking is much more effective.

Let me explain something, Twitter is a really weird place for me. It has followed people for me in the past, and unfollowed people who have sworn they didn’t soft-block me. I’ve had people tell me it’s blocked people for them, people they NEVER would have blocked.

It goes pear-shaped ALL THE TIME. So how is someone supposed to know if they are being soft-blocked?

The problem that happened occurred because this person DID NOT want me to follow them, but they didn’t block me. We had mutuals in common so I would often see their name and I really liked what they had to say. I admired their bravery.

In my naivety, I wanted (because I do have more followers) to boost their voice and opinion.

So I’d see a tweet that I liked a lot, I’d boost it, then realize that (I thought, because I didn’t at the time understand soft-blocking) my follow had dropped because of Twitter weirdness.

I clicked refollow at least three times before I dim-wittedly clued in (that whole, I was NOT able to tell I was being soft-blocked) that it was intentional.

I’ve owned up and apologized for my perceived mistakes there, and for my actual ones. But do you see that if that person had said to ANY of our mutuals to drop a word in my ear that “Hey, you’re making X uncomfy with the refollows” I would have stopped and NOT caused the problems it did? If they’d just blocked me, all the pain could’ve been avoided. Including my pain at not understanding what was happening, and my pain at having caused harm because I didn’t get it.

Instead, the person chose to use soft-blocking instead of communication or blocking.

How did that ACTUALLY help?

It didn’t. It harmed. It harmed me, and I inadvertently harmed THEM because I did NOT understand I was being soft-blocked. I was, at that point in time UNABLE to understand it. Making it an ableist act.

For what it’s worth, I *now* understand it when it happens. I absolutely do NOT like it because it messes with my perception of reality, but I DO understand what is probably happening.

How many people out there don’t though? Who are you hurting when you use this methodology? Is it worth it? (In some cases it absolutely will be, but you need to ask yourself that question.)

I’m not the only one this affects. There are so many people that don’t even know you CAN soft-block. Much less that people use it so flagrantly and without regard to the harm they are most definitely doing with it.

So what about power? Someone with more followers than me has more power. Someone with more money, a better job, better connections, they all have more power than me.

Someone who can work is also in a position of more power, or someone who gets a regular income in any form. They all have more power than me. So we need to be aware of our level of ACTUAL power as well when it comes to our actions.

But all of these things (and probably more that I can’t think of) play a part in the interconnected strands of how people interact with one another on Twitter and other social media outlets.

ALL of these things are things that make soft-blocking ableist if you have MORE power, and selfish, perhaps, if you have the same amount or less.

So what. So it’s selfish. Big whoop. There aren’t any Twitter police. Obviously, or we wouldn’t have any Nazis.

So you feel guilty about using a double-edged sword to protect yourself, one that can and does hurt people.

Big whoop. Again, your price to pay. If the cost is worth it to you, fine. Do it.

If it isn’t, then don’t, just unfollow instead.

If it’s ME you’re dealing with? I guarantee you that I will react better to a straight up unfollow or block than I will to you soft-blocking me and making me doubt the cohesion of my mind.

Because to me, and many people LIKE me. That’s exactly what that does.

It’s a minor form of gaslighting.

As I’ve said on Twitter in the past 24 hours or so, intent does not excuse the harm you cause.

It’s my intent to educate about the damage of soft-blocking. I’ve been told I’m hurting people by pointing this out.

I can’t pretend to really understand how it DOES. But I trust that people are telling me the truth that it hurts.

I’m sorry for that.

Truth often does hurt? It’s the precursor to growth and awareness.

Me pointing out that soft-blocking harms others is no different than whoever first noticed and pointed out that we needed ramps for disabled people to access public buildings.

I’ve been wondering the past day if those people, the ones who fought for that kind of accessiblity, have gotten as much flack and push back and accusations as I have about this issue.

Probably. But progress is never made by being silent.

I could go on with this and try to unpack how it’s less ableist for another disabled person to soft-block another disabled person, because if it’s done out of self-protection, at least there’s a justifiable reason for the harm they’re inflicting.

But again, intent and reasoning doesn’t change the harm they’ve done. Intent never excuses harm.

For any of my mutuals? Straight up unfollow me.

I unfollow for unfollow. You unfollow me, I unfollow you, always. Period. And that’s really the end of it.

I don’t follow many ‘real people’ on Twitter, at the time I’m writing this I have 515 accounts that I follow. More than half of those are images/news/weather etc accounts.

They aren’t people I talk to. I follow 4 people who don’t follow me back (they’re all authors, FWIW, some of my favorites.)

Everyone does Twitter in the way that best works for them.

If people don’t like the way *I* do things. They are well within their rights to not have anything to do with me.

Just like *I’m* well within my rights to do what *I* need to do to protect myself.

Which includes blocking people I’ve figured out have soft-blocked me.

Like it or not, the action harms me (and a lot of other people) by making us question our minds/memories/thoughts/etc.

That’s why it’s ableist and should be used with care, if at all.

Me: Autistic.

I’m sitting here cuddling my sick son. Wondering how badly the world is going to chew him up and spit him out because he’s autistic. Just like I am. It’ll be bad. I know that. The world is going to break him. I would let it break me, over and over and over again to spare him this pain. I’d let the world tear into me, over and over again if I could just spare my kids from feeling like this.

Even once.

It’s why I’m talking about this right now, when I’d really, really rather not. When I’d just as soon leave the internet and stop tilting at the windmills of allistic society in a vain hope of educating people enough about autism that they don’t hurt my kids.

The world is going to take fat, wet bites out of both of my kids and leave them scarred. They’ll develop massive mental illness problems because of how they’re wired and because allistic society doesn’t bother to try to understand how autistics think, communicate and feel.

It’s been an absolutely terrible 24 hours for me. I lost my temper and wrote a blog post about marginalized readers, privileged writers and THINKING about what you write and why you’re writing it.

A couple of people I thought might eventually be people I could call friends attacked me for it.

They didn’t explain how it hurt them. They just… attacked me for it on twitter. I admit, I got defensive, but I don’t know a single person on the face of the planet who wouldn’t when you have three or four people who you thought might be okay people suddenly in your mentions claiming you’re a harmful person.

Without making it crystal clear exactly how they came to that conclusion.

I mean. They could’ve explained? Instead of clinging to hurt feelings and twisted meanings of my words? Instead of being sarcastic and just telling me not to read their books? Instead of being angry and hurtful when I said over, and over, and over again that ‘I do NOT understand’ and ‘How did I do that?’

They all knew I’m autistic. But they treated me exactly like they would another allistic.

Their expectations were exactly the ones they’d have expected from another allistic.

Their reactions did not take into account that I don’t perceive or understand things the same way they do. Which does not make me stupid by the way. I’m a tested and certified genius, for what it’s worth (which is absolutely nothing). It just means I’m wired differently.

They expected me to process the sarcasm they used as ‘you hurt me’. Instead of saying THESE WORDS YOU USED HERE HURT ME AND THIS IS WHY.

They expected screenshots of my words as receipts to give me some clue as to why they were hurt.

Does that actually work for allistics? It doesn’t for many autistics. It doesn’t for me.

They expected me not to react when four people were in my mentions accusing me of terrible things. Only autistics aren’t allowed to react to that you know. Quite a double standard there.

They expected me to be ABLE to process the information as fast as they could throw it at me. Which, like… I can’t.

Actually cannot. It takes me longer to process written information because I’m dyslexic. (A common comorbidity with autism.)

I’ve since been accused of using my neurodiversity as a shield for me being a dick.

Except I apologized, both publicly and privately to the person I hurt the most. If I could AT all wrap my head around how I hurt the one who hurt ME the most, I’d apologize there too.

But I don’t get it, no one wants to explain it and fuck me. Aren’t I allowed to be hurt and angry too?

No. Of course not. I’m autistic. I wrote the blog post that got twisted to hell and gone. I’m not allowed anything.

I have not received any apologies. I have received correction, for which I’m grateful. I am SO grateful for people when the call me on my bullshit. I’m human, I’m quite capable of making mistakes. I’m also capable of learning when I fuck up.

But I truly did NOT understand how my words could be twisted so. Still don’t, for what it’s worth.

You know. When you’re autistic, you’re not allowed any room to be autistic. It’s why we mask so much.

We process information differently. We communicate differently, but the second you prove you’re not allistic?

You’ll get attacked. Especially on social media. This has happened so many times to me. It’s so fucking exhausting.

I’m coining a hashtag. #GuiltyOfBeingAutisticOnSocialMedia

It’s so long it won’t catch on, but it’s so freaking common, and not just for me. SO, SO many autistics have been in my mentions the past 24 hours offering support, telling me their stories of similar experiences and also… telling me that the blog post did, in fact, say exactly what I meant it to say.

Now… I DO mean exactly what I said in that post. There is NO ulterior motive, no hidden meaning. I wrote it when I was angry and I wasn’t as clear as I could have been in some ways. I edited it for clarity after the fact and all edits are labeled as such. It makes it rather a mess to read, but I don’t want to be accused of changing anything to cover my ass on top of everything else I’ve been accused of being the past 24 hours.

I don’t understand how allistics can’t understand that many autistics communicate using words we ACTUALLY mean. And nothing more.

Like… twisting an autistic person’s words is just flabbergasting. Most of us TRULY don’t mean more than what we say, with the EXACT words we used. We don’t mean the opposite, we don’t mean twisted and turned meanings, there is no undertone to our words. Because we’re not allistic.

Allistics don’t tend to communicate the same way, and I think that is the source of the problems I ran into? Maybe? There’s always this subtext to allistic communication that autistics both don’t catch and are for most of us, incapable of comprehending.

Yes. I needed to wait to post that until I wasn’t angry and could’ve proofed it for clarity. My opinions are strong, I’m blunt and I say things people really don’t want to hear.

Like some stories aren’t yours to tell. People really hate hearing that one, doesn’t mean it isn’t true. Especially, OMG especially white writers. Truly, they HATE hearing that one. If you chose to write a story, did your research and due diligence, of course you can write what you want. Even if it isn’t your story to tell. There aren’t any publishing police, no one is going to arrest you for it.

It’s your responsibility if you hurt someone too.

But yes, I’ve learned that the least I can do is make sure I proof posts for clarity before I release them onto the world.

Someone I regard as a friend said they could see how the post could be twisted and it doesn’t mean what I think it means.

I know what I meant. I SAID what I meant.

Even if I can’t understand the twisting, I can understand that some people will take my words and turn them into what they want them to mean rather than what I actually meant.

Isn’t that where asking for clarification is supposed to come into play?

The basic building blocks of communication?

“Hey, did you MEAN what I THINK you meant?’ < Clear question of intent.

“Oh, gods no, I didn’t mean that! THIS is what I meant.’ < Explanation of actual intent

‘Oh, cool. Glad I asked, cause if you’d meant that it would’ve hurt me a lot. We good?’ < Acceptance that they needed to ask for clarification, explanation.

‘Yeah. We good, oh and man, I’m so sorry if I hurt you, it was totally unintentional.’ < ^^Acceptance and apology.

‘S’okay. I forgive you. You didn’t know.’ < Acceptance and apology.

You have now communicated. Level up! (I’m a gamer, I’m exhausted, in a fibromyalgia flare from emotional stress and massively hurt, down to my soul from this latest of blows from being autistic on social media.)

I think one of the ways the world is going to hurt my children the most is the ways in which it’s hurt me the most.

It takes my words, it twists them, it assumes meaning that isn’t there, then it penalizes me for what people THINK I said.

When I was trying so damned hard to be clear with my words too.

You know… there’s an old saw.

Assuming. When you ASSUME you make an ASS out of U and ME.

They assumed, and turned us all into asses.

I assumed that people would read the actual words on the page, and turned us all into asses.

And you know? I already know this post will be used as yet more evidence that I’m using my autism as a shield from me being a dick.

I’m not trying to. I’m trying to explain how I think, what I perceived as it was going down, and why it happened. I’m trying to make sense of it all, so maybe I can keep it from happening again.

I’m trying to learn how to guide my kids so they don’t get hurt by the world as much as do.

I AM wired differently. If that’s using my brain as a shield it’ll be awfully messy. Brains go squish.

But it’s sort of like a sighted person screaming at a blind person to LOOK, SEE. The blind person cannot.

It’s like being furious at a deaf person because they can’t hear what you can.

It’s like screaming at a person who cannot walk to get up and run.

I don’t often consider my autistic brain to be a disability. I love my brain, it’s awesome. I love what I can do and learn and perceive with it.

Today though? I’m well aware that I AM at a disadvantage when trying to communicate to allistics.

And so are my kids.

Because society makes no accommodation at all for differences.

Which is ableistic as fuck.

 

 

 

THE RENAISSANCE CLUB by Rachel Dacus

Blog Tour January 23, 2018 - February 23, 2018 (1).pngThe Renaissance Club

By Rachel Dacus

Fiery Seas Publishing

January 23, 2018

Time Travel Romance

 

May Gold, college adjunct, often dreams about the subject of her master’s thesis – Gianlorenzo Bernini. In her fantasies she’s in his arms, the wildly adored partner of the man who invented the Baroque.

 

But in reality, May has just landed in Rome with her teaching colleagues and older boyfriend who is paying her way. She yearns to unleash her passion and creative spirit, and when the floor under the gilded dome of St Peter’s basilica rocks under her feet, she gets her chance. Walking through the veil that appears, she finds herself in the year 1624, staring straight into Bernini’s eyes. Their immediate and powerful attraction grows throughout May’s tour of Italy. And as she continues to meet her ethereal partner, even for brief snatches of time, her creativity and confidence blossom. All the doorways to happiness seem blocked for May-all except the shimmering doorway to Bernini’s world.

 

May has to choose: stay in her safe but stagnant existence, or take a risk. Will May’s adventure in time ruin her life or lead to a magical new one?

 

Buy Links

 

ISBN: 978-1-946143-41-9  ~  eBook  ~  $6.99

ISBN: 978-1-946143-42-6  ~  Paperback  ~  $16.99

 

 

Amazon  ~  Barnes & Noble  ~  Kobo  ~  iBooks

 

 

 

~  Praise for The Renaissance Club  ~

Enchanting, rich and romantic…a poetic journey through the folds of time. In THE RENAISSANCE CLUB, passion, art, and history come together in this captivating tale of one woman’s quest to discover her true self and the life she’s meant to lead. Rachel Dacus deftly crafts a unique and spellbinding twist to the time-traveling adventure that’s perfect for fans of Susanna Kearsley and Diana Gabaldon. — Kerry Lonsdale, Wall Street Journal Bestselling Author

The Renaissance Club is a beautifully written story about a woman torn between two worlds—the present and the distant past. This time-travel adventure kept me guessing until the end about which world May would choose, and if that choice would be the right one. Highly recommended for lovers of time travel fiction or anyone looking for a compelling story about a woman trying to find happiness. — Annabelle Costa, Author of The Time Traveler’s Boyfriend.

 

 

The Renaissance Club shimmers with beauty, poetry, and art. Author Rachel Dacus sweeps her readers away to Italy with her, lifting the senses with the sights, sounds, and tastes of that stunning country; imparting her deep knowledge of Renaissance and Baroque art while immersing the reader in a gorgeously romantic story. This book is time travel at its best! — Georgina Young-Ellis, author of The Time Mistress Series

 

 

 

About the Author:

 

Rachel Dacus is the daughter of a bipolar rocket engineer who blew up a number of missiles during the race-to-space 1950’s. He was also an accomplished painter. Rachel studied at UC Berkeley and has remained in the San Francisco area. Her most recent book, Gods of Water and Air, combines poetry, prose, and a short play on the afterlife of dogs. Other poetry books are Earth Lessons and Femme au Chapeau.

Her interest in Italy was ignited by a course and tour on the Italian Renaissance. She’s been hooked on Italy ever since. Her essay “Venice and the Passion to Nurture” was anthologized in Italy, A Love Story: Women Write About the Italian Experience. When not writing, she raises funds for nonprofit causes and takes walks with her Silky Terrier. She blogs at Rocket Kid Writing.

 

Social Media:

 

Website

Facebook

Twitter

Guest post By Rachel Dacus

Why Love Stories Need Happy Endings

Because if we don’t believe in the power of love, what do we have to live for?

Because love really does outlast everything. Once you’ve felt it, you never forget.

Because where you end a story is arbitrary. Life doesn’t always end in the right place. But you can always choose to believe in a happy ending if you look back far enough.

Because love is the only unending story.

Because ending is an arbitrary construct that often deprives life of meaning. Meaning is what matters.

“Because love is love is love is love is love is love is love is love is love
Cannot be killed or swept aside.” – Lin-Manuiel Miranda, accepting the Tony Award for Hamilton.

Because the day is long and when we read at night, we really need to go to sleep happy.

Because a romance story ALWAYS has a happy ending—and there’s a reason why it’s the bestselling genre of novel in America. That might just be it.

Because, c’mon, we all believe in love, and even if it hasn’t worked out, we just know one day it will. For someone, if not for us. And following her story, that makes it for us.

The Renaissance Club’s love story has the possibility of different endings in time—but you’d have to read it to find out which one is the happy ending. Or are they both?